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As a child my life Living with epilepsy can be likened to a journey through a labyrinth, where the path is not always clear and the journey is as much about self-discovery as it is about reaching a destination. Here’s a blog that explores this metaphorical chrysalis journey of transformation and radiant reinvention for those living with epilepsy.
As a Kintsugi woman, my life has been a tapestry of golden repairs, each crack filled with the molten gold of experience and resilience. Born into a world that was quick to label me as fragile due to my epilepsy, I learned early on that my journey would be different, but no less beautiful.
Infancy: The First Cracks Appear
My earliest memories are not of my own, but rather the stories told by my parents. They spoke of the fear that gripped their hearts when they first witnessed my infant body succumbing to the unpredictable waves of epilepsy. The initial cracks in my life’s journey appeared not as flaws, but as the beginnings of a unique pattern that would define me.
Childhood: Learning to Navigate
Childhood was a playground of both joy and caution. While other children ran freely, my steps were often measured, my activities monitored. Yet, in this careful dance, I found my rhythm, learning to navigate the world with an awareness that was both a shield and a guide.
Adolescence: Facing the Fear
As a teenager, the labyrinth of self-discovery took on new depths. The fear of a seizure in the unforgiving arena of high school corridors was a shadow that followed me. But within that shadow, I found my light, a defiant spirit that refused to be dimmed by the whispers of uncertainty.
Young Adulthood: Embracing Uncertainty
Entering young adulthood, the question of what journey epilepsy would take me on loomed large. Relationships, career choices, and dreams were all viewed through the lens of my condition. Yet, it was this very uncertainty that taught me the art of Kintsugi—embracing each break as a chance for reinvention.
Now: A Passionate Spirit Emerged
Today, I stand as a woman guided not by fear, but by a passionate spirit. Epilepsy did not confine me; it liberated me. It has taught me to live with intention, to cherish every moment, and to find strength in my vulnerability. My seizures were not just neurological events, they are reminders of the electric vitality that courses through me.
The Kintsugi Philosophy
Kintsugi is not just about repairing what is broken; it is about celebrating the beauty of the broken. My life, with its many repairs, is a symbol of this philosophy. Each golden seam is a story of triumph, a declaration that even in my most fragile moments, there was an opportunity to create something strong and stunning.
Looking Forward
As I look to the future, I don’t see a path defined by epilepsy childhood, but a journey enriched by it. I am a Kintsugi woman, beautifully imperfect, resilient, and whole. My spirit, guided by passion, is ready for my kaleidoscope of twists and turns to lie ahead, knowing that each will add to the masterpiece that is my life.
This is a reflection of my life lived with epilepsy, not as a limitation, but as a catalyst for growth and self-discovery. It is a celebration of the Kintsugi spirit within all of us, the unbreakable force that turns our trials into treasures.
If I could send a message to my younger self, I imagine my future self would offer words of wisdom and reassurance.
They might say,
Dear Younger Self,
You are stronger than you know. The challenges you face today will mold you into the unbreakable resilient and compassionate person you are destined to become.
Embrace each obstacle as an opportunity for growth, and remember that you are never alone in your journey.
Embrace the power within you and trust the journey you are on.
Trust in the universe's plan for you and follow your intuition.
Listen to the passionate innate knowing of self and shine.
XOXO
Continue the journey l..... Why ME?